Together Video Library

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Cope with Feeling Overwhelmed After Sickle Cell Disease Diagnosis

Parents of sickle cell disease patients may feel overwhelmed with information. Parents Emily and Quenton Mullins share 2 steps to help families manage.

1:06

Learning About Sickle Cell Disease

Nia Mullins shares how she gradually learned about her sickle cell disease and why it caused her to have pain. Learn more about Nia’s story.

1:00

Why Mental Health Is Important for Sickle Cell Disease Families

Mental health is important for sickle cell disease and bone marrow transplant patients and families. Learn how the Mullins family benefited from therapy.

0:44

Parenting Tips from Parents of Sickle Cell Disease Patients

Finding a balance between protection and fostering independence can be challenging when your child has sickle cell disease. Learn how the Allens approach parenting.

0:34

A New Life Outlook

Anabelle Guy received a stem cell transplant that cured her aplastic anemia. She shares how her life outlook focuses on the positives after her diagnosis.

0:00

What Is Pediatric Sarcoma?

Sarcomas are cancer found in the bone and soft tissue of the body. Watch this video to learn about sarcoma symptoms, diagnosis, and treatment in children.

0:27

Ricky on Having a Support Team

Ricky, a teen with cancer, talks about how having a team of people that support you gives a strong foundation to face cancer.

1:11

The calm that comes with a diagnosis

María talks about the calm she felt when she found out she had Ewing sarcoma in SJD Pediatric Cancer Center Barcelona in Spain.

0:48

Kinlee on Facing Medulloblastoma

Kinlee Johnson is a childhood cancer survivor. She shares hopeful thoughts for other children facing medulloblastoma.

0:57

Finding Hope after a Child’s Medulloblastoma Diagnosis

Nicole Johnson is the mother of a medulloblastoma survivor. She tells other parents facing this brain tumor not to give up because things get better.

1:24

Briana – Limb-Sparing Surgery

Briana discusses her limb-sparing surgery to remove cancer and how she adapted to changes as a result.

0:30

Li-Fraumeni Syndrome (LFS): Aaron advocates for himself

Aaron shares how he helped his dentist understand the risks of radiation exposure for people with Li-Fraumeni Syndrome.

0:30

Li-Fraumeni Syndrome (LFS): Aaron's relief with diagnosis

A family history of cancer often brings uncertainty and worry. Aaron discusses the relief of receiving a Li-Fraumeni Syndrome diagnosis.

2:15

Life After Limb-Sparing Surgery: Winkle Family

After undergoing limb-sparing surgery at 9, Micah Winkle discovered a new passion that helped him regain physical strength and mental health.

0:52

Li-Fraumeni Syndrome (LFS): Laughter is Good Medicine

Whitney was diagnosed with Li-Fraumeni Syndrome (LFS) as a teenager. She shares how laughter helped in her journey.