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Together is a new resource for anyone affected by pediatric cancer - patients and their parents, family members, and friends.
Learn MoreA survivorship care plan includes information about disease, treatment, and long-term health care needs. People who have had cancer or stem cell transplants (also called bone marrow transplants or hematopoietic cell transplants) receive survivorship care plans.
A survivorship plan includes:
A survivorship care plan is a brief, complete record of a patient’s treatment, specific medical concerns, and suggested health screenings – all in one document.
If you had chemotherapy, radiation, or a stem cell transplant, you may have unique health care needs for the rest of your life. A survivorship care plan will help you work with your health care providers to meet those needs.
Childhood cancers and blood disorders are rare. Primary care health providers may only see 1 or 2 people with this health history during their careers.
Providers may not be familiar with the late effects of treatment. Late effects are conditions that happen months or years after therapy. You may need certain health screenings earlier or more often than other people.
Your treatment center can give you a survivorship care plan. You should get an updated copy each time you visit your long-term follow-up care clinic.
You should share your survivorship care plan with:
Survivorship care plans may change over time. Share your plan each time you visit a provider.
Each plan is specific to that patient.
A survivorship care plan is specific to the patient for whom it was developed.
The summary of treatment contains:
The follow-up care plan may include:
Some organizations have online tools to help create survivorship care plans. These include:
Talk with your doctor before using one of these tools.
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Together does not endorse any branded product mentioned in this article.
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Reviewed: May 2023