Menu Close

Video Library

Videos are available with subtitles

We're sorry, it looks like there has been an error. Please try again soon.

2:05

Staying Positive and Curious

Daniel Ndibou shares his journey with sickle cell disease, focusing on positivity and curiosity to overcome challenges.
1:02

Coping with Difficult Days: Books, K-Dramas, and Rest

Nana and Mame Qhartey share how they manage their sickle cell disease and cope with tough days by reading books, watching K-dramas, and resting to feel better.
1:13

Prioritize Mental Health: Rest, Reflect, and Take Breaks

Nana Qhartey stresses the importance of mental health, encouraging breaks and rest without feeling guilty.
0:52

Raising Awareness of Sickle Cell Disease

Nana Qhartey shares her experience with sickle cell anemia, aiming to educate others about the condition and its challenges.
2:12

Sisters with Sickle Cell: Understanding and Supporting Each Other

Nana and Mame Qhartey talk about their journey with sickle cell anemia and how their experience helped them bond and support each other.

0:39

Don’t Be Afraid to Ask for Help

Sickle cell disease patient McKenley Allen tells other patients to not be afraid to ask for help when pain crises happen. Learn more from McKenley.

1:06

Learning About Sickle Cell Disease

Nia Mullins shares how she gradually learned about her sickle cell disease and why it caused her to have pain. Learn more about Nia’s story.

0:27

Ricky on Having a Support Team

Ricky, a teen with cancer, talks about how having a team of people that support you gives a strong foundation to face cancer.

0:52

Li-Fraumeni Syndrome (LFS): Laughter is Good Medicine

Whitney was diagnosed with Li-Fraumeni Syndrome (LFS) as a teenager. She shares how laughter helped in her journey.
0:28

Ricky on Accepting a New Normal

Ricky, a teen with cancer, shares how he moved forward after his diagnosis and accepted a new normal.
0:30

Li-Fraumeni Syndrome (LFS): Knowledge is Power

Li-Fraumeni Syndrome (LFS) is a hereditary cancer syndrome. Mary shares her perspective on how being proactive can empower patients.
1:45

Supporting a Sibling with Li-Fraumeni Syndrome (LFS)

Li-Fraumeni Syndrome (LFS) is a hereditary cancer syndrome. Kate shares how she felt when she learned her brother had LFS.
0:30

Li-Fraumeni Syndrome (LFS): Staying Close to Family

Li-Fraumeni Syndrome (LFS) is a hereditary cancer syndrome. Hear how one family copes by staying close to family and connecting with others who have LFS.
0:30

Living with Li-Fraumeni Syndrome (LFS)

Li-Fraumeni Syndrome (LFS) is a hereditary cancer syndrome. Mindy and Breanna talk about continuing to live your life and making each day count.
1:28

Gentic Testing for Li-Fraumeni Syndrome (LFS): Anne's Family

Li-Fraumeni Syndrome (LFS) is a hereditary cancer syndrome. Anne discusses the decision to have her children tested for LFS after her husband's diagnosis.